The Hospice Doctor

My weekend was bitter-sweet. The husband of a very dear friend passed away Saturday morning. My heart aches for her and the grief she is and will be dealing with a long time. 

I had a house guest this weekend who is also a dear friend of mine. Her name is Ellen and she is a private person so I will not give her full name. We met when I heard her speak the same year I was diagnosed with diabetes. That was 2003. 

I helped her with a Diabetes support group she organized here and then wrote articles from interviews of local people who had diabetes. I heard their stories which opened my eyes and I hope the eyes of those who read about them. At that time Ellen said we had a large number of people in this county who had the disease, but had not been diagnosed. She went on to get the hospital and the health department involved with getting people diagnosed and classes set up to teach them what they need to know to take care of themselves as well as how to talk to their doctors. 

I admired her work and it was not that easy. It is always hard to create change, especially here in the mountains. 

She now works as a Hospice Doctor and I can tell she takes great comfort in being able to keep patients out of pain and letting them die peacefully. Hospice care can be the only place a sick person gets the pain relief they need. Hospitals will not usually give that kind of care. I write from experience. My husband suffered horribly while at Emory Hospital, but once he was in Hospice Care, I insisted he have whatever was needed to relieve his pain.

Ellen tells me the families are the biggest challenge she faces with each patient.

"My son, Mark is coming in from California tomorrow. We want my husband awake so he can talk to Mark." 
Why would you want your husband to suffer in excruciating pain so he can speak a few words to Mark? The concern seems to be more for the son who is coming than for the patient who is dying.

I remember the nice young doctor at the Hospice Center where Barry had been admitted and was finally free of pain saying, "We'll cut back on the morphine today."
"Why on earth would you do that?" I asked. 
"So you and he can talk to each other."
I told him we had talked to each other for 45 years and we had nothing left to say that was worth making him suffer any more pain.

I hope if I am ever in such a state that no one will cut back on the medicine just so I can mumble a few words or they hope I will recognize someone. The patient, at this point, has no interest in others. He is dealing with pain, his own body and mind failing, and has to force himself to meet others' expectations. 

Families that make a loved one suffer in such a way are selfish and have no idea what it is to suffer immense pain. 

Ellen, who was a doctor when I met her, said she chose to become a hospice doctor after seeing and hearing about the horror and pain Barry went through when we could find no help for his suffering with cancer. I admire her so much. She told me her major concern for the hospice patient is that he have no pain. She tells her nurses that first they make sure the patient is pain free. 

I hope all hospice doctors and nurses today make that their first priority. If we have to die, at least let us go peacefully. 

Everybody Needs a Good Friend

Here it is Sunday again.
The weekend passed so quickly I hardly knew it. One of the best parts of this weekend was a visit with a former student of mine who is now one of my dearest friends. We both agreed we could have talked for many more hours if we had the time even though we don't see each other often.

Those are the friends we cling to in our lives and if we are lucky we never let them go. In my youth, I did not make the effort to hold on to friends, even those I thought about often, and I have some regrets about that. I can't change the past, but I do make a big effort to keep in touch with people I meet now, people who hit a note with me that resonates even when they are not near.

When we are bombarded with all the "bad news" of the world, and we might think that everyone is an enemy, if we are open to meeting others and listening to them, we see a different world. As my friend, Rebecca, and I discussed on Saturday, sometimes people are suspicious of generosity from others. They are skeptical of someone who is kind or giving. They wonder, "What does she want from me?"

I have experienced that reaction from writers when I reached out to them to help them promote their books or write an article about them. I've met some types who were so suspicious they refused my offer. As my personality type is one who doesn't get angry but feels pity for those people, I immediately wonder why they think that way. Could it be that their self-esteem is low and they can't imagine anyone wanting to do something for them without some payback?

Most writers I meet have many of the same issues with themselves as I do. We beat up on ourselves because we are not disciplined enough to write everyday. We don't submit our work. We never think it is ready to send out. We say we don't have time for our passion but will spend our time cleaning house, doing laundry and all the things we hate to do, while avoiding putting ourselves in a chair and picking up a pen or hitting the keyboard. 

We are not bad, lazy, or worthless people, and we need community with other writers to help us see that we all have similar problems. We have our needs that might not be exactly like those of others, but it helps to vent with fellow writers. 

So many of my good friends are students who took my classes in the past 8 years. In my classes we write about ourselves, share our stories and bond in a lasting way. Sometimes we cry or laugh out loud, but that is okay, too.  

Many of my friends are women I met when I took my first writing classes. For twenty years I have shared my sadness, my happiness, my successes and my failures with my fellow writers in my literary community. Some of my friends I've met through affiliation with North Carolina Writers' Network West. They don't live close to me, but we keep in touch. 

One of the highlights of this weekend was hearing the voice of a former student of mine, Staci Bell, as she called to tell me a poem and a flash fiction piece she has been wanting to place were both accepted for publication. One is for an anthology about wolves.

I am as happy for her as I would be if it were my writing that had been accepted. I know that feeling when a stranger reads your work and really likes it. When they like it well enough to publish it in a book or magazine to be read by many people, it feels like seeing your name up on a marquee on Broadway, especially when you have not had that before. 

Friends come in many ways and at any time. You never know how a person can influence your life, can help you through hard times, will need your help one day, and how much you can come to love them. Be generous to others, and they will surprise you with their own caring. 

My friends give to others in whatever way they can. 
My neighbor cooks once a week for a free noonday meal for those who need fellowship and nutrition for their bodies. Another friend, in her eighties, says cooking for others is her ministry. (To minister: to give service, care or aid; attend, as to wants or necessities.)

Maybe we can all ask ourselves what is our ministry to others? We don't have to go to church or have a calling from God to minister. 

I saw a little boy on Sunday Morning who lost his mother recently. He gives out tiny little toys to people on the street to see them smile. He just wants to make people smile and not be sad. We never know when the smallest thing can make a difference.(This story reminds me of the Little Drummer Boy)

My friends and other kind people give me hope that this world is much better than the TV news would have us believe. 
What do you think? Is human kind as bad as what is seen on television?  Do you think our parents thought the world was in deep trouble and feared for their children's future?